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Support Groups at Help4HD

At Help4HD, we offer a variety of support groups to provide assistance, community, and encouragement to those affected by Huntington's Disease. Our private chats and virtual support groups are here to help you connect with others and find the support you need. Below is a schedule of our ongoing support groups:

 

Caregiver Support Group

  • When: Every Tuesday at 2pm PT via Zoom

  • Description: Join our dedicated caregiver support group to share experiences, challenges, and tips with others who are providing care to loved ones with Huntington's Disease.

  • This support group is specifically for caregivers who are not at-risk or gene-positive. We do have other supports for these demographics!

  • Though this particular group meets once a week, we do also have a messenger group where people talk daily.

 

JoHD Support Group

  • When: 1st and 3rd Tuesday of every month at 5pm PT via Zoom

  • Description: This support group is for those impacted by Juvenile Huntington's Disease. Connect with others, share your story, and find solidarity in our supportive community.

  • We have a very active JoHD messenger group that chats daily about tips/tricks, symptoms, and needed supports.

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Monday Mixer

  • When: Every Monday at 4pm PT Via Zoom

  • Description: This group is open to anyone impacted by HD/JoHD and is a ton of fun! Mostly, people just talk, catch up, and it is a very light-hearted way to connect. This group also has a messenger chat connected for daily communications, if you’d like to utilize that.

 

Bereavement Support Group

  • Description: This group offers a safe space for those grieving the loss of a loved one to Huntington's Disease. Join our private chat to find out when the next virtual meeting will be held.

 

Spanish Speaking Support Group

  • Description: We provide support for our Spanish-speaking community. Join our private chat to connect and learn when the next virtual support group will be.

 

Prodromal Premanifest Early Symptomatic (PPEM) Support Group

  • Description: This group is for individuals in the early stages of Huntington's Disease. Join our private chat to receive support and stay informed about our upcoming virtual meetings.

 

To receive more information about any of our support groups, or to get access to any of the Zoom/Messenger groups, please email Jamie Halloway: Jamie@Help4HD.org

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