Support Groups

HELP 4 HD TALLAHASSEE SUPPORT GROUP

Meetings
The last Saturday of each month, 2-330 pm
Location
The Magnolia Room
Leroy Collins Leon County Public Library
200 W Park Ave
Contact Co-Facilitator
Sharon Thomason, Help 4 HD Executive Secretary
(850) 509-0532

TAMPA SUPPORT GROUP

Meetings
Second Thursday of each month at 3:00 pm or 7:00 pm depending on location
Location
Fruitville Road Public Library, Sarasota, FL 3:00 pm
Morsani Faculty Building at USF at 7:00 pm
Contact
Facilitator: Marcie McCall
Vicki Owen
(813) 451-2849

UNITED STATES SUPPORT GROUPS

Some of these support groups are owned and facilitated by individuals; some are facilitated by Help 4 HD; others are facilitated by institutions; and some are facilitated by HDSA. Most are facilitated under the rules and guidelines of the individual owners. The criteria for attendance may vary from group to group, or state to state. Please be sure to call or email the specific support group in your area to inquire about participating.

If you don’t see a support group in your area and you are interested in starting or co-facilitating one, we are here to help you.

Riverside Support, CA

Meets Every Second Thursday of the Month (5:30 – 7:00 pm)

Location:
Parkview Community Hospital
Founders Center Building
(Zweig I Room)
3865 Jackson Street
Riverside, CA 92503

Contact Co-Facilitator:
Maria Barnes, MSG
Inland Caregivers Resource Center
800-675-6694

AFFORDABILITY
SHOP & RESOURCE

Center in Lompoc, CA

Coming Soon!

NEW HELP4HD
SUPPORT GROUPS

Tampa, FL

Vicki Owen 813-451-2849

TALLAHASSEE, FL

Last Saturday of each month, 2:00-3:30 p.m.

Magnolia Room (2nd floor of the Leroy Collins Leon County Public Library)

200 W. Park Ave.

Tallahassee, FL 32301

Facilitator: Sharon Thomason (850-509-0532) sharon@help4hd.org

START YOUR OWN
"HELP 4 HD SUPPORT GROUP"

For more information contact

Katie Jackson

916-698-0462

katie@help4hd-international.org

Support Groups

TO SUPPORT HELP 4 HD INTERNATIONAL PROGRAMS, PLEASE MAKE YOUR CHECK PAYABLE TO:

Help 4 HD International

423 W. Ocean Ave.

Lompoc, CA 93436

Contact Katie Jackson, President/CEO with your inquiries:
916-698-0462

In the note section of your check please specify the name of the specific program you wish to support. Wire instructions are available upon request: katie@help4hd-international.org

THANK YOU FOR YOUR SUPPORT! WE ARE HONORED TO SERVE YOU!

 

 

Future Programs

JHD Documentary

Help 4 HD International is in the process of filming families that have children living with Juvenile Huntington's disease. Our goal is to bring JHD awareness and funds to research and families living with Juvenile Huntington's disease.

JHD Live In Hope Book Project

We are hoping to publish a future book of testimonials of families that are living with Juvenile Huntington's disease.

Huntington's Disease Cookbook

We are in the process of collecting recipes that families have found helpful for weight gain as well as recipes that are helpful for individuals that have issues with choking. We are excited to in the future publishing this helpful tool for caregivers that are caring for their loved ones with Huntington's disease.

JHD Patient Regisrty

Help 4 HD International is working on building a HIPPA certified registry for Juvenile Huntington's disease.