This Quarter, Help 4 HD Asked a Few Questions, and the Community Responded!

1. I wish I knew that it would be possible to find happiness again when I found out about Huntington's disease.

2. I wish I knew that most of the medical field would have no clue what it really is when I found out about Huntington's disease.

3. I wish I knew that my husband had it before I conceived... when I found out about Huntington's disease.

4. I wish I knew that it was much more than chorea when I found out about Huntington's disease.

5. I wish I knew that I would be ok. I found out my mom has it when I was 14 and wanted to cut myself short because I saw no reason to continue, but now it's been 3 years later and I'm feeling more optimistic while also using my account to spread awareness and explore my passion for neuroscience when I found out about Huntington's disease.

6. I wish I knew that it would be possible to find happiness again when I found out about Huntington's disease.

7. I wish I knew his father had HD when I found out about Huntington's disease.

8. I wish I knew that it has outsmarted numerous brilliant scientists. That it's much more than un unbelievably cruel monster from hell in fact no words can describe it. That I would hear for 28 years that we are nearly sorted, it won't be long now when I found out about Huntington's disease.

9. I wish I knew more about everything at the time when I was little when I found out about Huntington's disease.

10. I wish I knew more about my family history when I found out about Huntington's disease.

1. What haven't I done. Lol. When Nathan has expressed this in the past, maybe my response is wrong, but I kind of feel that we've found a new purpose which is educating and bringing awareness to HD. We use our voice and our journey with this disease to try to help others going through what we're going through. If anyone had told me 12 years ago when we started dating that I'd be advocating for a rare disease that I'd never heard of, I'd have thought they were crazy. That we'd be advocating anything would have been foreign to us. Sometimes in life, our purpose changes, but then again with that change comes a "higher" purpose. If that makes sense?

2. We try and ask our mom for help; especially when we don't need it. I have asked for her advice when it comes to my relationship, my kids, my career. I also ask for her help when I am folding things like towels and I am sure to express how helpful she is to me.

3. When my wife has similar comments I listen and hope that 'this too shall pass', but I also know that she often feels like a burden and trying to balance her feelings can be a challenge. I try to set goals with her or make plans for the future even if it is something small. I want her to have something to plan and look forward to.

4. This is hard, I haven't reached this yet, and I hope I don't have to

5. THERAPY! For them and me. Honestly, I don't know how to answer things like this and I get stumped.

1. Exercise is my best friend when it comes to my mind. When I work out, especially run, it helps ease my mind.

2. Most days I feel pretty good, other days I struggle...honestly, I try and sleep it off sometimes. other times I try to get out of the house even if it is to the store. I guess it just depends on the day.

3. Sunlight and friends. Easier said than done, but it's what I hope for on terrible days.

4. Distraction, just like it says, I try to distract myself by finding things to do. I am a caregiver, so my thoughts aren't about myself. it is more of grief and sadness. I will binge watch TV shows or do a puzzle/paint. I often find myself sitting and thinking about what my partner is thinking and feeling. It can be a terrible loop if you don't actively try to change your thoughts.