May is the month that inspired my caregiver’s book, I Fight for Understanding. May is Huntington’s Awareness month!! As a way to give...

“Sometimes superheroes reside in the hearts of small children fighting big battles.” – Author Unknown Any parents who have or had a child...

My Story In January of 2009, I started caring for my mom in my home, after years of her being homeless, ill, unreachable and 3,000 miles...

Of the troubling behavioral changes that occur with the onset of Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD), and...

Filing for disability and navigating the system of SSDI, SSI, Medicare, and Medicaid can be both challenging and frustrating. It’s a...

So, this is hard for me to write about. Like really, really hard. My fingers literally try to curl up every time I go to hit a letter on...

Figuring out what to get someone who has Huntington’s disease can become more and more difficult as the disease progresses. As promised,...

Caregivers of people with Huntington’s disease often feel lonely, even when they’re with their loved ones. Sharon Quigley uses poetry to...

Surviving the Holidays 📷  by Lauren Holder Happy holidays! ‘Tis the season to be stressed. At least that’s how it feels for me, so I...

For People With HD/JHD & Their Caregivers By Lauren Holder Figuring out what to get someone who has Huntington’s disease can become more...

Roche/Genentech announced today that they have enrolled the first patients in the HD Natural History and Phase III GENERATION HD1...

The purpose of this Phase III study is to evaluate the efficacy and safety of RG6042 treatment for manifest Huntington’s disease. This...

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Dear global HD community, Today we are sharing an update on the timing of the topline data readout from our ongoing PRECISION-HD program,...

21 March 2019 Amendment to the RG6042 Phase III GENERATION HD1 study design Dear global HD patient community, Today we are sharing an...