Sharon McClellan Thomason
Huntington’s Disease: All About the Kids
Talking to kids about HD can be one of the toughest parts of the Huntington’s disease journey. It’s one thing to explain that Mom or Dad...
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Sharon McClellan Thomason
Jun 3, 20193 min read
Stepping Away to Step Up When Huntington’s Disease Is Too Much
Often, I hear the pleas of caregivers saying, “I feel overwhelmed.” “My HD loved one does not qualify.” “I hate my life.” “I want...
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Sharon McClellan Thomason
Jun 3, 20193 min read
Help 4 HD Announces Huntington’s Disease Awareness Month Programs
“We are excited this year about our programs we will be launching in the month of May for HD 📷Awareness Month,” says Katie Jackson,...
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Sharon McClellan Thomason
Jun 3, 20197 min read
Gastrointestinal Symptoms in Huntington’s Disease
Let’s talk about one of the “untalked about” symptoms of Huntington’s disease: gastrointestinal (GI) issues. According to Dr. LaVonne...
2,474 views1 comment
Sharon McClellan Thomason
Jun 3, 20192 min read
Huntington’s Awareness Month, Here We Come!
May is the month that inspired my caregiver’s book, I Fight for Understanding. May is Huntington’s Awareness month!! As a way to give...
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Sharon McClellan Thomason
Jun 3, 20195 min read
Navigating Juvenile Huntington’s Disease
“Sometimes superheroes reside in the hearts of small children fighting big battles.” – Author Unknown Any parents who have or had a child...
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Sharon McClellan Thomason
Jun 3, 20198 min read
Placing a Loved One with Huntington’s Disease
My Story In January of 2009, I started caring for my mom in my home, after years of her being homeless, ill, unreachable and 3,000 miles...
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Sharon McClellan Thomason
Jun 3, 20198 min read
Hypersexuality and Huntington’s Disease
Of the troubling behavioral changes that occur with the onset of Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD), and...
4,071 views4 comments
Sharon McClellan Thomason
Jun 3, 20195 min read
Huntington’s Disease: Filing for Disability
Filing for disability and navigating the system of SSDI, SSI, Medicare, and Medicaid can be both challenging and frustrating. It’s a...
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Sharon McClellan Thomason
Jun 3, 20196 min read
I Never Thought It Would Get Better, Either
So, this is hard for me to write about. Like really, really hard. My fingers literally try to curl up every time I go to hit a letter on...
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Sharon McClellan Thomason
Jun 3, 20192 min read
For People With HD/JHD & Their Caregivers
Figuring out what to get someone who has Huntington’s disease can become more and more difficult as the disease progresses. As promised,...
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Sharon McClellan Thomason
May 29, 20191 min read
You Pay the Higher Cost
Caregivers of people with Huntington’s disease often feel lonely, even when they’re with their loved ones. Sharon Quigley uses poetry to...
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Sharon McClellan Thomason
May 28, 20192 min read
Surviving the Holidays
Surviving the Holidays 📷 by Lauren Holder Happy holidays! ‘Tis the season to be stressed. At least that’s how it feels for me, so I...
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Sharon McClellan Thomason
May 28, 20192 min read
Holiday Gift Ideas
For People With HD/JHD & Their Caregivers By Lauren Holder Figuring out what to get someone who has Huntington’s disease can become more...
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Sharon McClellan Thomason
May 28, 20196 min read
First HD patients enrolled in Roche/Genentech studies
Roche/Genentech announced today that they have enrolled the first patients in the HD Natural History and Phase III GENERATION HD1...
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Michael Sabado
May 28, 20193 min read
Roche Phase III GENERATION HD1 Study: Announcement of First European Countries/Expected Sites (Spain
The purpose of this Phase III study is to evaluate the efficacy and safety of RG6042 treatment for manifest Huntington’s disease. This...
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Michael Sabado
May 18, 20191 min read
First Responders Video & Brochure
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Michael Sabado
May 18, 20192 min read
WAVE PRECISION-HD Timing Update
Dear global HD community, Today we are sharing an update on the timing of the topline data readout from our ongoing PRECISION-HD program,...
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Michael Sabado
May 18, 20194 min read
Amendment to the RG6042 Phase III GENERATION HD1 study design
21 March 2019 Amendment to the RG6042 Phase III GENERATION HD1 study design Dear global HD patient community, Today we are sharing an...
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