Sharon McClellan Thomason
“Look Up,” Conclusion: A Short Story by Brent J. Walker
Whoops! That was one of my what I like to call “knee-jerk reaction” thoughts. Depression is a bitch that way. I know all women aren’t...
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Sharon McClellan Thomason
Jun 3, 20192 min read
FDA Writes Back
Voices from all across the United States are being heard by the Food and Drug Administration (FDA) in Silver Spring, Maryland. Help 4 HD...
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Sharon McClellan Thomason
Jun 3, 20193 min read
Two Shadows
Two shadows live in this house. One is male, 6-feet tall with a husky build, 31 years old. The other is female, 5’7” tall with a slim...
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Sharon McClellan Thomason
Jun 3, 20195 min read
First HIPE Day Answers Questions from Huntington’s Disease Community
Have you ever wanted to sit down and just talk to a healthcare professional who is actually knowledgeable about Huntington’s and Juvenile...
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Sharon McClellan Thomason
Jun 3, 20197 min read
The Grief of Huntington’s Disease
This is the first article in a four-part series. Traditional teachings of the Western culture say that there are five stages of grief...
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Sharon McClellan Thomason
Jun 3, 20195 min read
The Grief of Huntington’s Disease, Part 2
Grief is not a one-size-fits-all tidy little package that fits neatly into a box to be stored away. Not everyone grieves in the same way...
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Sharon McClellan Thomason
Jun 3, 20198 min read
The Grief of Huntington’s Disease, Part 3
Grief is not limited to caregivers, and it can sometimes result in rifts among families who should be coming together instead of being...
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Sharon McClellan Thomason
Jun 3, 20197 min read
The Grief of Huntington’s Disease, Conclusion
How does one even begin to cope with the depths of such all-encompassing grief? Recover-from-Grief.com suggests that first, you must give...
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Sharon McClellan Thomason
Jun 3, 20193 min read
Huntington’s Community Talks About Grief
The recent series, “The Grief of Huntington’s Disease,” published in Help 4 HD’s The Huntington’s Post, an outpouring of response from...
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Sharon McClellan Thomason
Jun 3, 20195 min read
Community talks about intimacy, education with HIPE panel
**Mature material has been changed for our audience** The following is a transcript of the HIPE (Highly Interactive Participant...
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Sharon McClellan Thomason
Jun 3, 20195 min read
On Being Resilient
One thing that families living with HD/JHD learn fairly quickly is resilience. As a grassroots nonprofit run by family members living...
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Sharon McClellan Thomason
Jun 3, 20194 min read
Understanding Irrational Behavior in Huntington’s Disease
It happens out of the blue. There you are, going along with what appears to be a somewhat normal moment in time, when suddenly the...
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Sharon McClellan Thomason
Jun 3, 20195 min read
HIPE Focuses on the Kids
Kids were a big focus for part of the questions asked of the HIPE panel in Sacramento, at our Highly Interactive 📷Participant Education...
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Sharon McClellan Thomason
Jun 3, 20199 min read
Dealing With Irrational Behavior
What gives? Suddenly, your loved one with Huntington’s disease is making no sense at all; his or her behavior is totally off the wall....
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Sharon McClellan Thomason
Jun 3, 20197 min read
Finding a New Normal
“December 15th will be two years since we lost Cory,” says Stacey Sargent, who lost her son to JHD when he was 21. “Every holiday and...
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Sharon McClellan Thomason
Jun 3, 20195 min read
Gifting and HD
It started with a post on Facebook. Ashley Yerby wrote, “My mom has HD and has been in the nursing home for a little over a year. She is...
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Sharon McClellan Thomason
Jun 3, 20193 min read
Ray Glasser: Huntington’s Warrior
Sue Gamble is the caregiver for her brother, Ray Glasser. He has been in Lakeland Skilled Nursing and Rehabilitation Center in Angola,...
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Sharon McClellan Thomason
Jun 3, 20194 min read
Bioethics in Huntington’s Disease Treatments and Therapies
Katie Jackson is a strong advocate for the Huntington’s and Juvenile Huntington’s disease community and is president/CEO of Help 4 HD...
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Sharon McClellan Thomason
Jun 3, 20192 min read
Survivor’s Guilt With Huntington’s Disease
When it comes to Huntington’s and Juvenile Huntington’s disease, guilt can play a huge factor in the lives of those who test negative and...
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Sharon McClellan Thomason
Jun 3, 20194 min read
Choosing Death with Dignity in Huntington’s Disease
Alan Pfeffer is a retired attorney in New York state whose first wife died from Huntington’s disease (H📷D) and whose 37-year-old...
654 views1 comment
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