Our story

About Our Foundation

Incorporated and tax exempt in 2013, Help 4 HD's mission is to educate the world about Huntington’s disease (HD) and Juvenile Huntington's disease (JHD) through its multimedia communications platform. Through live events, Help 4 HD Radio, Help 4 JHD Radio, symposia, conferences, publications, and support groups, Help 4 HD brings education, information, and resources to the global community, partnering with medical professionals, researchers, institutions and industry for the most current and credible information and resources available.

What Is Huntington’s Disease?

Huntington’s disease (HD gene found in 1993) is an inherited and ultimately fatal brain disorder that affects control of movement, thought, and behavior. Every child of an individual with HD has a 50/50 chance of inheriting the mutated gene that causes HD. More than 30,000 Americans have been diagnosed with HD, and more than 250,000 others are at risk.

Learn More


I Never Thought It Would Get Better, Either


Huntington’s Disease: Filing for Disability


Hypersexuality and Huntington’s Disease


Useful Information

Help 4 HD International

5050 Laguna Blvd. 112 543, Elk Grove, CA 95758

Cell: 916.698.0462

Get in touch

Upcoming Events

Help 4 HD International HIPE~Gainesville, FL

Gainesville, Florida

June 30, 2018 8:30 am to 4:00 pm | More Information >

Matt Harmon Memorial Golf Tournament

Des Moines, Iowa

July 9, 2018 | More Information >

Amethyst’s Dine & Dance 4 a Cure

Bath, New York, Steuben County Veterans Memorial – VFW

August 25, 2018, 4:00 pm | More Information >

See all events
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